Présentation d’un guide de pratique sur les interventions de l’ergothérapeute en lien avec la sexualité et la vie amoureuse auprès de clients vivant avec une maladie neuromusculaire

Summary :

Sexuality is a basic need and contributes to the fulfillment of the human being. Disabilities seen in neuromuscular diseases can interfere with the accomplishment of activities related to sexuality. The limited literature on this subject and undefined professional roles cause a lack of knowledge among occupational therapists as well as discomfort in tackling this issue, despite the need expressed by clients. A research project was conducted to define the roles and possible interventions of occupational therapists in enabling sexuality of adults living with a neuromuscular disease. A practice guideline was therefore written to inform occupational therapy practice. This project was developed using the “Rare Knowledge Mining” process (Gagnon et al., submitted for publication) and led to a practice guideline published and available online for free since 2018. It helps support occupational therapists wishing to intervene in activities related to sexuality with adults with a neuromuscular disease as well as those with certain specific symptoms (fatigue, pain). The contribution of occupational therapists in this domain is essential and in particular because of their unique capacity for in-depth analysis of the activity and their holistic vision centered on the client. This article will therefore give an overview of the full practice guidelines.

Article rédigé par :

• 

  Samar Muslemani

  Ergothérapeute, M. Erg.
  Étudiante à la maîtrise-recherche
  en sciences de la santé
  Centre de recherche Charles-Le-Moyne –
  Saguenay – Lac-Saint-Jean sur
  les innovations en santé
  Université de Sherbrooke, Faculté de médecine
  et des sciences de la santé
  Groupe de recherche interdisciplinaire
  sur les maladies neuromusculaires
  CIUSSS Saguenay – Lac-Saint-Jean,
  Jonquière, Québec, Canada
  samar.muslemani@usherbrooke.ca

  
  
• 

  Cynthia Gagnon

  Ergothérapeute, Ph. D.
  Professeure titulaire
  École de réadaptation, Faculté de médecine
  et des sciences de la santé
  Université de Sherbrooke
  Directrice du Groupe de recherche
  interdisciplinaire sur les maladies
  neuromusculaires
  Chercheur régulier Centre de recherche
  Charles-Le-Moyne – Saguenay –
  Lac-Saint-Jean sur les innovations en santé
  Clinique des maladies neuromusculaires
  CIUSSS Saguenay – Lac-Saint-Jean,
  Jonquière, Québec, Canada
  cynthia.gagnon4@usherbrooke.ca