Summary :
In a context where self-determination is increasingly central in the social and healthcare sector, this article aims to highlight how this concept impacts the occupational participation of young people with Down syndrome. Using appropriate tools and methods, the occupational therapist seeks to enhance motivation, create decision-making spaces, and strengthen the individual’s agency.
The clinical situation presented demonstrates increased engagement, greater initiative-taking, and improved family involvement. However, certain limitations were identified : organizational constraints, difficulties in transferring skills to real-life settings, and tensions between the realities on the ground and the ideal of self-determination. These findings underscore the significant value of self-determination in the context of intellectual disability, as well as the challenges associated with its practical implementation.
This case study confirms the central role of the occupational therapist in developing adapted tools, raising awareness within the person’s environment, and maintaining a holistic view on the individual. It appears crucial to continue reflecting on the factors that promote occupational participation for people with intellectual disabilities, particularly those with Down syndrome.
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Article rédigé par :
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Chloé Mourier
Ergothérapeute DE
SESSAD Trisomie 21, Gard
chloe.mourier02@gmail.com