Explorer « vivre chez soi » avec une personne ayant la maladie d’Alzheimer : récit de vie de couple

Explore “live at home” with a person having the Alzheimer’s disease: Narrative of a couple’s life

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Summary :

Background:
Alzheimer’s disease affects not only the person but also all the surrounding. Most of the time, they want to stay at home as long as possible. However, there is a lack in literature concerning the signification for them for “living at home”.
Purpose:
This study will explore and describe the meaning of “living at home” by couples with a member having Alzheimer’s disease. This will help to guide effective ways to support occupational therapists working with this group.
Method:
Eight couples participated in the interview based on narrative life.
Findings:
Four meanings for “living at home” were identified by couples : (1) a place for living (a familiar place corresponding to one’s preferences), (2) a place for binding and belonging (a place with memories and meaningful objects), (3) a place of well-being (a place for relaxing), (4) an unfamiliar place (the rearranged setting due to the disease’ consequences) and the importance of choice.
Implication:
The common perceptions about “living at home” influenced the decision to stay at home or not. A basic training on the family centered approach and the use of the narrative of life could allow couples to make a decision and live through it. Other studies will be needed to fully understand the aftermath of the uncertainty period following the decision to stay at home or not.

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Article rédigé par :
  • Jean-Michel CAIRE

    Ergothérapeute, Ph. D.
    Université de Bordeaux
    Responsable de la Coordination
    Pédagogique à l’IFE de Toulouse
    caire.jm@chu-toulouse.fr


  • Sylvie TÉTREAULT

    Professeure
    Haute école de travail et de la Santé (EESP)
    Haute École spécialisée de Suisse occidentale (HES-SO)
    14, ch. des Abeilles
    1010 Lausanne, Suisse
    sylvie.tetreault@eesp.ch


  • Bernard SARRAZY

    Professeur des Universités
    Sciences de l’éducation (70e section du CNU)
    Laboratoire Cultures et Diffusion
    des Savoirs (CeDS EA 7240)
    Université de Bordeaux
    bernard.sarrazy@u-bordeaux.fr


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